In this study, the authors describe the experiences of Mexican American family members who immigrated to the United States and then experienced the death of a child. Findings revealed that education and income were significantly related to attitudes toward hospice but acculturation was not. Phase 2 gathered evidence for reliability and validity. Nurses in any environment where people die are beginning to encounter these initiatives, which centre around planning and prioritising care for people in the weeks and months leading up to their deaths. The book's contributors explore the role that palliative or comfort care plays in enhancing the quality of life of nursing home residents as well as the medical, familial, psychological, cultural, and financial issues that influence decision-making about end-of-life care.
They are very well placed and should use their position to help uncover better ways of improving the quality of care to the patients and their families. Yet there is ample evidence that a caring approach that embraces psychological, psychosocial and spiritual support is highly effective and is valued by patients and families Beaver et al, 2000. The relationship between acculturation and attitudes of Latinos toward hospice was examined in a sample of 380 Latinos from southern New Jersey. For nurses, it is central to the values and principles that underpin clinical practice. Nursing is concerned with the human condition in times of health crisis and its very essence therefore is bound up in human nature. It employs a broad definition of palliative care as comfort care that is appropriate across the illness experience and not limited to the end of life. There is no doubt that the intent behind such laws is indeed one of compassion for people who find themselves in a desperate situation.
This volume is useful as a supplement for course work in this field and includes many useful tools and resources. Results suggested that, not unlike the professions of medicine and nursing, social work knowledge and skill development in the care of the dying is uneven and not integrated sufficiently with theoretical concepts and research. Introduction Palliative care is an emerging medical field characterized by attention to the improvement of quality of life and function for those with serious or progressive illness. Various dementias alter many aspects of the life and interactions between older adults and their families. Potential participants were contacted by mail and telephone.
Bern-Klug concludes with an overview of the factors that will shape the future of palliative care for advanced chronic illness. Patient and family are the focus of care This is a core principle that cuts across all settings because the patients and their families are the unit of care, not the disease 2, p. Implications for social work education and hospice practice in both countries include the need for social work student and practitioner self-awareness in order to prepare for culturally competent practice and policies that are relevant across cultures. One variable measured feeding tubes prolong life did not have a significant loading on the subconstruct, end-of-life factors. The clear message of support for both patient and family, combined with a multidisciplinary team approach, is consistent with good nursing practice and can help us to conceptualise what nurses should be attempting to achieve when they have contact with dying people.
Findings from this study may inform supervisors and educators regarding training needs of those preparing to enter the rapidly growing workforce of gerontological social workers who may be called upon to care for elders at the end of life. Positive reappraisal mediated the relationship between resilience and proactive coping, whereas negative cognitions about the self mediated the relationship between resilience and proactive as well as reflective coping. Findings suggested positive associations between pain and chronic disease, pain and multimorbidity, as well as an inverse association between pain and education. Because a majority of nursing home residents are older adults facing multiple, advanced chronic conditions, this book is grounded in the provision of palliative care-especially palliative psychosocial care-for people with advanced chronic illness who live in nursing homes. As medical technology continues to advance and health care choices become more complicated, the preservation of end-of-life autonomy is an increasingly important issue faced by various client populations.
Nursing homes are complex organizations with multiple interacting structures and processes that influence resident outcomes. . San Diego: University of California. Successful incorporation of palliative care in nursing practice is not a function of complex specialist environments, medical interventions or availability of drugs and disciplines 3, p54. Distinctive perceptions of social workers' roles were identified for the different stakeholder groups i. Of the variables examined, depression, social support, and hope distinguished between the two groups. Both are discussed, as well as how social workers can assist with the provision of palliative care services in a culturally sensitive manner.
The skills, attitudes and values described in this article apply to nurses on any part of the register, working in any environment where they encounter the dying. Rather, we anchor our discussion on the assumption that care needs are equally valid, and our purpose is to explore the issues that impact the provision of quality end-of-life care in nursing home settings for those who require this care when a disaster occurs. Implications for the development of preventive intervention strategies are discussed. Such ideology is important in nursing philosophy of individualised care that embraces a holistic approach and active patient participation in care 9, p. Journal of Mental Health Counseling, 29 1 , 17— 49. This publication can be found online at or hard copies may be ordered through this site.
As a service to our customers we are providing this early version of the manuscript. Social work research in the care of the dying is also developing and addressing many previously overlooked areas of end of life care, such as issues concerning ethnic, cultural, and economic diversity, substance abuse, incarceration, interventions at different life cycle stages, problem-solving interventions, and intervention in community contexts. Available online at: accessed 30th October 2008. International Journal of PalliativeNursing; 6: 220—227. Yet its practice recommendations ca. Although end-of-life care is often thought to be synonymous with geriatric services, it also focuses on sudden death, unexpected illness, and anticipated death from illnesses at earlier ages, including childhood. A survey design, using self-administered questionnaires, including a bi-dimensional acculturation scale, examined attitudes toward hospice.
Recommendations for spiritual assessments and interventions are offered. Many nursing homes in the United States struggle to provide even basic attention to palliative care at the end of life. From a cross-cultural ethical perspective, it is important for health care providers to understand that in a pluralistic society, patients and their families bring multiple models of healing and decision making to clinical encounters based on different cultural and religious values. One such experience is the grief related to the loss of a family member. Society of Critical Care Medicine. Social Work in Health Care, 30 2 , 81-99.